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Edition of 12 April 2024 - Newsletter - OrphaNews - International
WebSep 6, 2024 · The European Joint Programme on Rare Diseases has launch the ERN Research Training Workshops funding opportunity. The goal of the workshops is to … WebTraining und Fortbildungen der Europäischen Referenznetzwerke (ERN) für seltene und komplexe Erkrankungen Training und Fortbildungen der Europäischen … tchandala
EJP RD ERN Research Training Workshop Call Endo-ERN
WebFeb 10, 2024 · The development of new genetic testing methods and the approval of the first treatments raises questions regarding when and how to perform screening for inherited neuromuscular conditions. Screening directives and access to the different techniques is not uniform across Europe. The patient advisory board of the European reference … WebAug 18, 2024 · Training needs in rare neuromuscular diseases in Europe: an EURO-NMD Survey. EuroNDD 2024 20 April 2024 Fatigue in Neuromuscular Disorders 27 April 2024 Floppy child 4 May 2024 EJP RD – ERN Workshop: RARE TOGETHER 8 May 2024 - View complete list of events - WebERN Skin European Reference Network on Rare and Undiagnosed Skin Disorders 10. ERN EURACAN European Reference Network on Rare Adult Cancers (solid tumours) 11. … tchangai benevento